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Parental experiences in caring for Autistic Individuals: Challenges, Adaptations, and Strategies for Holistic Support.

Autism is a complex neurodevelopmental disorder requiring comprehensive state-provided care, including medical rehabilitation, legal education, vocational training, and social support. However, the continuity of care across different life stages remains inadequately explored, leaving significant gaps in understanding the lifelong needs of autistic individuals. This study examines the lived experiences of parents caring for autistic individuals, aiming to identify challenges, impacts, and caregiving dynamics that contribute to a holistic care model. A qualitative phenomenological approach was employed, involving nine parents of autistic individuals receiving services at Hat Yai Hospital, Songkhla province, Thailand. Participants, aged 43–63, were primary caregivers of autistic persons aged 12–31 years. The study identified three key themes: (1) Parents’ perceptions of their autistic child, highlighting awareness of atypical development, gradual symptom improvement, and necessary lifestyle adjustments; (2) Caregiving behaviors, including emotional management, social integration, access to government support, and future planning; and (3) Strategies for overcoming challenges, emphasizing acceptance of the parental role and reliance on religious beliefs as coping mechanisms. Understanding these experiences provides valuable insights for improving autism care and serves as a foundation for developing a holistic, integrative care model that bridges healthcare, education, and community support. Such an approach promotes inclusion and ensures a more comprehensive and sustainable support system for autistic individuals and their families.